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Partners 2017-11-03T16:18:12+00:00

Partners

Partners

Our AYA Partners working in research, treatment and continuum of care

Angie Fowler Adolescent Young Adult Cancer Institute at University Hospitals Rainbow Babies Children’s Hospital

Angie’s Institute meets the unique needs of teen and young adult cancer patients.  Often caught between pediatric and adult oncology, adolescent and young adult (AYA) cancer patients face unique challenges because their cancers, treatments and social needs differ from infants, younger children and adults. The Adolescent & Young Adult Cancer Center works to raise symptom awareness and provide highly personalized, comprehensive programming for teens, including early detection strategies, nurse navigator services, survivorship programs, and other supportive services. This AYA cancer program also works to enroll more teens in the clinical trials process, expand access to promising new treatments, and strives to provide better outcomes for young adults with cancer.

Angie’s Garden at the Angie Fowler Adolescent Young Adult Cancer Institute at University Hospitals Rainbow Babies Children’s Hospital

Open year-round, this 7,500-square-foot rooftop healing garden is a magical place where UH Rainbow Babies & Children’s Hospital patients and families can take a break from the clinical environment without leaving the facility. In addition to the outdoor space, the garden has an indoor Horticultural Therapy Suite which provides patients with a place they can enjoy all year for gardening and plant-based activities for exercise, relaxation and stress reduction.

The Angie Fowler Adolescent and Young Adult (AYA) Cancer Research Initiative at the Case Comprehensive Cancer Center

A National Cancer Institute (NCI)-designated Comprehensive Cancer Center located at Case Western Reserve University. The center integrates the cancer research activities of the largest biomedical research and health care institutions in Ohio – Case Western Reserve, University Hospitals (UH) Cleveland Medical Center and the Cleveland Clinic. The Angie Fowler Adolescent and Young Adult (AYA) Cancer Institute at UH and the Angie Fowler Adolescent & Young Adult Cancer Research Initiative at the Case CCC are working together to provide hope to young people with cancer through innovative and collaborative discoveries, treatment and care.  The funds from the Fowler Family Foundation help accelerate the development of therapies to stop the spread of tumors in this unique population which often show a different biological disposition and request a different approach to care than children and adults.

Teen Cancer America

Designed to help hospitals and healthcare professionals bridge the gap between pediatric and adult oncology care. Teen Cancer America aims to educate and support hospitals and outpatient facilities in the development of specialized units for this age group. The units are a place just for teens and young adults where the cancer experience is understood and the importance of living life through the cancer journey is nourished.

First Descents

Recognized leader in outdoor experiential programming. Participants experience free outdoor adventure programs that empower them to climb, paddle, and surf beyond their diagnosis, reclaim their lives, and connect with others doing the same.

Flying Horse Farms

Provides magical, transformative camp experiences for children with serious illnesses and their families – free of charge. Located in Mt. Gilead, Ohio, the camp hosts about 900 children and families each year.  The children who attend camp have illnesses including cancer, heart conditions, rheumatoid arthritis, blood disorders, asthma, gastrointestinal disorders and craniofacial anomalies.

Critical Mass: The Young Adult Cancer Alliance

A community-powered advocacy organization whose mission is to ensure adolescents and young adults have no barriers to survive and thrive after a cancer diagnosis. Critical Mass works in community hospitals, cancer centers, and Washington, DC to transform adolescent and young adult cancer care in the United States.

M Powerment

A support organization geared specifically toward men affected by cancer.  It was founded to bring men of all ages together to lead amazing, impactful lives after a cancer diagnosis. Programming focuses on using the experiences that are life affirming combined with concrete, implementable steps to live an enriched life.

The Gathering Place

A community-based cancer support organization that provides support, education and empowerment to individuals and families touched by cancer.  The Gathering Place is unique in that it is the only independent nonprofit organization in Northeast Ohio that exclusively focuses on the psycho-social needs of individuals with cancer and their loved ones.

University Hospitals – Telemental Health for AYA Cancer Survivors

In order to address the barriers often associated with access to mental health services, which can include financial factors, distance, lack of transportation, poor health, or childcare issues, UH is performing a year-long pilot effort to assess the efficacy of a telemental health intervention to increase access to mental health services for AYA patients in need of psychosocial care. Telemental Health is a “virtual visit” that allows the same level of mental health care to patients via digital technology that is provided in person.

Global AYA Cancer Congress

Healthcare professionals from across the world, including oncologists, hematologists, research scientists, psychologists, nurses, social workers, youth workers, allied health professionals, advocates, and more, join together at this groundbreaking summit. Presented at this summit are advances in psychosocial and supportive AYA services, best practice models, groundbreaking science and other important news from around the world in advancement of AYA treatment and care.